•  “Hair – loss and hope”

    HAIR COMES IN MANY COLOURS, LENGTHS, AND STYLES. REGARDLESS OF HOW WE WEAR IT, HAIR IS PART OF OUR IDENTITY—AT LEAST, FOR MOST OF US. IT FRAMES OUR FACE, REFLECTS OUR PERSONALITY, AND CAN EVEN DEFINE OUR FEMININITY. BUT HAIR IS ALSO ONE OF THE FIRST THINGS YOU LOSE TO CHEMOTHERAPY. IN FEBRUARY 2023, IT WAS MY TURN. SLOWLY BUT SURELY, I SURRENDERED MY LOCKS. BUT NOT EVERYTHING WAS SADNESS—THERE WAS PLENTY OF ROOM FOR HUMOUR. LOSING MY HAIR WAS CERTAINLY A TRANSFORMATION JOURNEY THAT I’D GLADLY SHARE WITH YOU. BECAUSE THERE’S REALLY A LOT YOU CAN DO TO GET THROUGH IT WELL.

    An ode to my mane

    I was born with thick, black hair. My mother was even a bit startled when she first saw me (she said). One of my earliest memories is of twirling a lock around my finger while drinking from my bottle as a toddler. I loved it! And to this day, I still twirl a strand of hair around my finger when I’m deep in thought.

    My mane—thick, full, black with brown highlights—made me feel beautiful. It was part of who I was.

    “You’re gonna lose your hair” -she said…

    It’s February 2023. I was sitting with the oncology nurse when she said, “You’ll probably lose your hair. This chemo causes hair loss.”

    Honestly? After the shock of my diagnosis and the long list of gruelling side effects (early menopause, anyone?), hair loss didn’t feel like the biggest blow. And the nurse reassured me—there was plenty I could do about it. She was right.

    Still, it would be a mistake to underestimate the impact. I felt it, especially in the long run and at certain moments. Like the time I was in the shower and I suddenly held a whole thick strand in my hand. I won’t lie—I was shocked for a moment. Or when I caught a glimpse of a lady in the hallway mirror: a woman with a few sad, grey strands tied into a pathetic little ponytail. A second later, I realised—that woman was me. I felt the tears streaming down my face.

    But in the end, losing my hair was easier to accept than I had expected. I approached it with a mix of nostalgia and curiosity, seeing it as a chance to try new styles. And surely, this loss wasn’t as absolute or irreversible as some others one might endure in life. But it was still something I had to go through. A couple of things helped me through that process:

    The kindest hairdreser

    A good hairdresser is priceless. I had the best. Anja was my rock.

    As soon as I knew I’d lose my hair, I decided to go out in style. First, I went to Anja to celebrate my long hair: a wash, blow-dry, and styling session. A week later, I cut it to shoulder length. The week after that, even shorter—a bob. And then shorter still. When my hair was almost gone, Anja always had a solution. She was endlessly patient, doing everything she could to make me feel beautiful and safe.

    Cold-cap

    Nowadays, there’s the cold cap—a cooling helmet that lowers your scalp temperature to help protect your hair follicles from chemo. But it doesn’t work for everyone, and some people find it too uncomfortable.

    It works best for those with fine hair. I had thick hair, so I still lost a lot, just at a slower pace. Still, I thought it was worth trying. And if it doesn’t work, you can always stop.

    Wigs, headbands and hats

    Wigs and hairpieces are expensive. A wig can easily cost over €800. While part of it is covered by health insurance (€482.50 in 2025), you still have to pay quite a bit yourself. Fortunately, there are other options, like donation wigs for those on a budget. You can also get headbands made from your own hair, hats, scarves, or affordable hairpieces from your local hairdresser—so many possibilities!

    But where do you start? How do you choose? Everyone says, “Pick what suits you.” But it’s not that simple. Because how do you know what suits you until you experience it—until you’ve actually lost your hair and are wearing a wig, a hat, or just your bare scalp?

    I chose a wig, mainly for work. The idea of showing up bald or in a hat felt like a no-go. But at the time, I had no idea how I’d feel about it—I’d never been bald before. In the end, I only wore my wig at work. Even though it was beautiful and fit well, it still felt unnatural, and people could tell. Most of the time, I just walked around with my grey strands in a tiny ponytail. I also discovered that the cheaper hairpieces from my hairdresser suited me better than a fancy wig.

    Throughout this process, it does help to have someone who’s been through it before. At Cancer Connect, we have a huge database of options and, more importantly, our own experiences. We’re here as a sounding board for women going through this now.

    Humor en hoop

    Here’s the surprising part: Losing my hair gave me, unexpectedly, plenty of opportunities to laugh. And I say that as someone who cringes at people who laugh everything off—so that wasn’t it.

    I just developed a healthy dose of self-mockery and found ways to shock people a little—brilliant! Like the time I lifted my wig at a Disney ticket counter while asking about wait times—I got a fast pass immediately. Or when I put on a bright blue wig and greeted my kids with a straight face when they came home from school. Or when I plopped my wig onto my bald brother-in-law’s head—hilarious! We laughed so much.

    And then, there’s hope: Your hair comes back. In the meantime, there are countless options, and you can even find ways to have fun with it. But most importantly, it’s not forever.

    Almost everyone gets their hair back with ‘chemo curls.’ Ever heard of them? What happens next? I’ll tell you in my next blog.


    Do you relate to this experience?

    Are you at the start of this journey and unsure what you want or what’s available? How do you feel about it? Share your experience with us—together, we are stronger. And of course, you can always contact  me directly.

  • “Fuck the sword! Ambition and dreams in times of uncertainty”

    FOR THOSE OF US AFFECTED BY A LIFE-THREATENING ILLNESS OR MAJOR ADVERSITY, AMBITION CAN SEEM OUT OF PLACE. ANY BIG DREAM OR LONG-TERM PLAN FEELS LIKE A NAIVE ILLUSION. AFTER ALL, WE HAVE A “SWORD OF DAMOCLES” HANGING OVER OUR HEADS. THAT’S EXACTLY HOW I FELT ON MY BIRTHDAY LAST YEAR. “FUCK THE SWORD!” I THOUGHT, AND DECIDED TO MAP OUT MY AMBITIONS. NOW I’D LIKE TO SHARE MY EXPERIENCE WITH YOU, HOPING IT INSPIRES YOU TO PURSUE YOUR OWN DREAMS, EVEN WHEN THE OUTLOOK SEEMS BLEAK.

    January 2024: False hope

    anuary 2024. There I was, dealing with cancer, on sick leave, with some treatments still ahead. Sitting at my table, I stared at the sky in front of me, painfully aware of how much uncertainty there was, how little control I had… and how much I still wanted to do. Rarely had I felt so powerless, so frustrated. I kept hearing well-meaning advice: “Is that realistic, or just false hope? Don’t aim too high, be kind to yourself, and enjoy the day.”

    Of course, I’m fully aware of my situation. That sword of Damocles hangs over me: the statistics aren’t great; I might be living my last five years. But at the same time, my body is responding well to treatments, my quality of life is reasonably good, and I might even make it to 60.

    The sword of Damocles… fuck it!

    I still have dreams, and I can live with both perspectives (short-term and long-term). So, why shouldn’t I have ambitions or make plans? Take this dream of mine: “Becoming a psychologist specializing in trauma.” I want to pursue a six-year university degree. But there’s a chance I won’t live that long, and my treatments clash with a traditional classroom schedule. Still, I can start the program and, in the meantime, use my coaching training and personal experience to support clients and peers. Voluntarily and with passion. With ups and downs, I enjoy the practice. Suppose I don’t reach the date of my diploma. Suppose my dream changes along the way. Does that matter? NO! Because I’m living my dream every day in practice.

    So… fuck the sword! I started planning.

    Tool: The Dream Matrix

    To begin, I drew a matrix inspired by the “thought report” from the Cognitive Behavioral Therapy. It helped me map out my dreams without losing sight of reality. Here’s how it looked:

    THEMEDREAMPLANFACT
    TRAVEL & LIFESTYLE Travel the world. • 3 months MX.
    • 1 week EU.
    • Roadtrip MX: 7 weeks, 4500 km, 5 states.
    • 1 long weekend Münster.
    • Empty savings!
    PERSONAL DEVELOPMENT•Be a trauma psychologist. •Support other individuals in same situation.• University.
    • Seize experience as cancer survivor.
    • Start blog.
    •Voluntary work as experienced buddy for Olijf en Cancer Connect
    • Featured story in ‘De Telegraaf’, participation in 2 awareness campagnes, 2 lectures
    • Blog, own and guest author for Cancer Connect and Shit ir Shine
    BODY•Get fit, young, and healthy again: Boulder and dancing.• Yoga.
    • Mastectomy + reconstruction.
    • Targeted therapy.
    • Recover a fit silhouette.
    • Mastectomy done
    •Targeted therapy (regardless of my anemia)
    • Got new curls.
    • Got anemia.
    ENVIRONMENT | HOME•Major home renovation•Flower garden • Guests garden-accomodation.
    • First step garden re-styling.
    • Guest accomodation finished.
    • Adjacent piece of land purchased.
    LOVE | RELATIONSHIPSStay close to family as much as possibleSpend at ALL holidays together with sistersXmas holiday together.

    Notice anything? Most things didn’t go as planned. And I definitely had tough moments where I felt like a complete failure. Still, three things helped:

    1. Realism. Many things didn’t happen as expected. I lacked time, money, patience, or energy.
    2. Gratitude. Some things did turn out well.
    3. Celebrate and Seize the Day. Flexibility created space for unexpected, sometimes better, opportunities. Take, for example, the road trip to Mexico and my new curls 🙂


    NOW. I have a strong dislike for artificial perfection; so let me be clear again: it has been tough for me as well. But now I know it is indeed possible to channel ambitions and dreams even in the midst of uncertainty.


    January 2025: Wondering what lies ahead

    So here I am again, another birthday sitting at my table, staring at the empty air. I wonder what this year will bring. There’s a special celebration ahead, visitors, and new challenges. Let’s see what happens.


    Do you relate to this experience? Having ambitions and dreams while feeling powerless or like everything is failing. Remember: you are always the owner of your dreams. Take the first step, no matter how small.

    Feel free to reach out if you want to share your story.

    Or follow me on Insta:  alba.espinosa.vd.bunt


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  • Leven met “het zwaard van Damocles” boven het hoofd en ambitie in het hart

    VOOR ONS, GERAAKT DOOR EEN LEVENSBEDREIGENDE ZIEKTE, LIJKT AMBITIE ONGEPAST. ELKE GROTE DROOM OF LANGE TERMIJN PLAN EEN NAIEVE ILLUSIE. ER HANGT ONS IMMERS EEN ‘ZWAARD VAN DAMOCLES’ BOVEN HET HOOFD. ZO ZAT IK OOK DE DAG VAN MIJN VERJAARDAG VORIG JAAR. “FUCK HET ZWAARD!” DACHT IK EN HEB MIJN AMBITIES IN KAART GEBRACHT.

    “Fuck het zwaard! Dromen en plannen als je je machteloos voelt” is een reflectief blog dat ik schreef voor Cancer Connect; waarin ik mijn ervaring deel van hoe het voelt om ambitie en dromen te hebben terwijl er een “zwaard van Damocles” boven je hoofd hangt. Als je je een tikje belachelijk voelt omdat je dan nog ambities heb… Het blog ontstond als een reflectie aan het begin van dit nieuwe jaar, terugkijkend op wat het afgelopen jaar mij heeft gebracht. Ik deel mijn ervaring in de hoop dat andere in een onzekere situatie erkenning en hoop kunnen vinden.

    In het blog beschrijf ik het moment waar ik, ondanks mijn situatie, besloot mijn dromen te erkennen en tóch plannen te maken. Ik tekende een “Dromen Matrix,” een praktische tool (gebaseerd op het Gedachtenrapport uit de Cognitieve Gedragstherapie) waarmee ik mijn ambities in kaart bracht, zonder de realiteit uit het oog te verliezen. Hiermee heb ik keuzes gemaakt voor mijn persoonlijke groei, gezondheid en relaties, en ervoer ik hoe flexibiliteit en waardering mij vooruit hebben geholpen.

    De illustratie en foto’s bij het stuk tonen enerzijds mijn reis door dromen en realiteit, en anderzijds de uitdagingen van ambitie in een onzekere context. Ze vangen de kern van mijn boodschap: je mag altijd ambitie hebben, zelfs als je je leven niet zeker bent.

    Je leest het volledige verhaal, inclusief praktische tips en inspiratie, via de link naar CancerConnect.

  • Ambar Adela: The power of the heart

    IT’S A WARM DAY IN AUGUST. LUNA AND I ARE WALKING THROUGH THE MAZE OF THE SANTO DOMINGO ARTISAN MARKET. A BIT DIZZY FROM THE HEAT AND THE COLORS (AND ME FROM ANEMIA), WE STOP TO LOOK AT SOME QUARTZ BRACELETS AT ONE OF THE COLOR-PACKED STALLS. THE BRACELET I WANT TO BUY FOR LUNA IS A BIT TOO BIG. “IF SHE LIKES IT, I CAN ADJUST IT TO HER SIZE,” SAYS A SOFT VOICE. FIVE SECONDS LATER, I’M STANDING IN FRONT OF A BEAUTIFUL WOMAN WITH INDIGENOUS FEATURES, HER FACE PERFECTLY MADE UP AND A BIG SMILE WITH DIMPLES. HER NAME IS ADELA, THE OWNER OF THE STALL, WITH HER OWN JEWELRY BRAND, “ÁMBAR ADELA.” HER VOICE IS OFTEN INTERRUPTED BY A CONTAGIOUS LAUGH. FOR EXAMPLE, WHEN SHE SEES MY SURPRISE AS SHE EXPLAINS THAT SHE ALSO DESIGNS THE EMBROIDERED CLOTHING SHE SELLS. AT THAT MOMENT, I TAKE A CLOSER LOOK AT THE MERCHANDISE AROUND ME: EMBROIDERED CLOTHING, SILVER JEWELRY, AND SEMI-PRECIOUS STONES, ALONG WITH AMBER PIECES. “I CAN’T BELIEVE IT! HOW DO YOU FIND THE TIME?” I ASK, AMAZED. – SHE LAUGHS AGAIN. – “WHY WOULDN’T YOU BELIEVE ME? WHEN YOU DO THINGS WITH LOVE, IT DOESN’T MATTER HOW SMALL THEY ARE. THEY ALWAYS TURN OUT WELL. STEP BY STEP.” AND THAT’S HOW WE BEGIN A CONVERSATION THAT FILLS ME WITH ADMIRATION.

    Adela’s story

    Adela comes from the Tzotzil community in a nearby village. Her mother taught her to embroider when she was a child. She married very young and had three daughters, who are now young adults. When she tells me her age (she’s only six years younger than me, though she looks at least ten years younger), I almost fall over.

    “What?! Forty-seven years old?! I don’t believe it,” I exclaim.

    Her laughter jingles again.
    “You don’t believe anything I say!” But when your spirit is well, and you do things with love, your body reflects that.”

    She tells me that she divorced her daughters’ father long ago. It must have been a difficult time, but I see no trace of bitterness or resentment on her face. Instead, there’s a serene joy.

    “Look at me. I live better this way. Things have gone well for me,” she says, the dimples in her smile reappearing. “I got divorced because I couldn’t rely on him anyway. Once I became independent, I had to decide how to move forward and support my daughters and myself.”

    “When your spirit is well, and you do things with love, your body reflects that”

    Adela Gómez

    From embroidery to beads

    That’s when I remembered my mother’s embroidery. I started by embroidering blouses to sell at the market, with things I love: flowers, fruits, and birds. My style of embroidery sold well. So, I began to embroider other garments, not just traditional ones, but also jeans, jackets, blazers—everything. One thing worth the mention: I only made things I enjoyed creating.

    I’ve always liked accessories, so when I could save a bit of money, I bought some beads and stones and started making small bracelets, earrings, little things. Those sold well, too. Over the years, my stall grew, and I was able to get a small shop here in Santo Domingo. My daughters also grew up; they had their own responsibilities by then. But between them, they helped me formalize my designs into a brand, “Ámbar Adela.” They created the labels for several lines, and well… here we are,” she finishes with a smile.

    Life Force

    I listen in admiration, especially because I know firsthand how hard it is to build a jewelry brand—it’s no easy task. I tell her that years ago, I had my own brand, “Luna de Plata,” and that I gave it up when it was almost fully formed.

    “Why?” she asks.

    With some embarrassment, I admit,
    Lack of experience, but mostly fear. Fear of failing.”

    Seeing Adela standing there so calm and full of confidence, surrounded by her creations, I rush to tell her that only now, years later, I understand that I can do whatever I set my mind to. That only now do I feel the confidence to face my fears head-on. I tell her I’m surviving cancer and that I’m filled with plans that feel very real to me: this trip through Mexico, my therapy practice, my communication work to support other cancer patients, and the psychology studies I will begin this year.

    She says, “Everything will work out for you, I know it. The things done with love, with motivation, step by step, always turn out well. Because that’s how God works.”

    And the way she says it, I feel a deep certainty in every word. My body vibrates with serene clarity, and in that moment, I understand that she is driven by the Life Force.


    Adela and her unbreakable spirit

    Adela shows that Life Force is not just about carrying on when everything is against you. It’s about finding joy in the small things, feeling love in everything you do. It’s knowing that no matter what happens, you always have the strength within you to start again.

    Her story is not just one of courage but a tribute to the strength of the heart. And so, she continues, with a smile and unstoppable energy, her hands never ceasing to create, her heart always open to her family and her customers. She is living proof of the power of the heart, of love for family, and of the unbreakable spirit of a woman determined to love life no matter what.


    How many times have you had to start again? Which are the little things that bring you joy?
    Share your thoughts in the comments.


    Do you not recognize this Life Force in your own story, or do you feel like you have lost yours?

    Let me know, I am a message away


    Life Force Stories | Part 2

    Credits: Pictures from Adela Gómez Facebook page | Picture ‘Santo Domingo Market’ generated with AI, based on my own original photo’s.

  • Omar Fabián: A heart driven by creativity and legacy

    THE DAY I MET OMAR, I HARDLY KNEW HIM YET. IT WAS PURE CHANCE THAT MY GAZE FELL ON HIS WORKSHOP JUST AS I HAD DECIDED I HAD SEEN ENOUGH BLACK CLAY WORKSHOPS AND CRAFTS. I ADMIT I WAS ALSO FEELING WEAK DUE TO THE SIDE EFFECTS OF THE CANCER TREATMENT, SO I WAS SAD TO GIVE UP THE VISIT. BUT THAT HOUSE ON THE CORNER, COMPLETELY PAINTED BLACK, PIQUED MY CURIOSITY. HOW HAD I NOT NOTICED IT BEFORE? SO I DECIDED TO GO IN. THAT VISIT, FUELLED BY CURIOSITY, OPENED MY EYES AND MIND: I MET SOMEONE WHO SEES EVERYTHING WITH A FRESH PERSPECTIVE. DRIVEN BY LOVE FOR HIS WORK AND NEW IDEAS, OMAR ELEVATES HIS ANCESTRAL LEGACY TO THE LEVEL OF ART.

    Omar’s Story

    It was midday in San Bartolo Coyotepec, the town was beaten by the blazing sun and dust. My friend Tania, Fer and I had already toured several workshops with the typical black clay crafts from Oaxaca. I was feeling weak due to my extreme anemia and it was hard for me to admit I had to give up the visit to go eat and rest. I told myself “whatever, I had anyway seen enough workshops and black clay for today”… Just as we were about to grab some lunch before heading out, I noticed a house entirely painted black on the opposite corner. Clearly, it was a workshop we hadn’t seen before. 

    As soon as we entered, it felt like rediscovering black clay. The designs were a reinvention; everything was special. “You agree this isn’t typical; this is design,” Tania said to me. The further we went in, the more we were impressed: the shapes were bolder, the sizes bigger, the designs more creative. Even the way the clay was used was different: I saw it on walls, floors, paintings and even urns.

    At that moment, a young man hurried past; it was Omar Fabián, one of the three brothers who own the workshop and the author of these innovative pieces.

    My curiosity was fully awake, so I asked him a question that sparked an inspiring conversation:  

    “In all the years I’ve been buying black clay, I’ve never seen it applied like this. Are these your ideas?”  

    At first, he was very polite but seemed not particularly interested. “Thanks,” he responded, somewhat surprised, “yes, these are my designs.”  

    “This goes beyond tradition. What has brought you to this point?”

    I realised I had now caught his attention, perhaps because he sensed that my interest was genuine. That’s when the conversation began. He spoke of his family legacy, with over three generations of black clay artisans. He also mentioned his design studies at the University of Oaxaca. How he had combined his heritage, knowledge, and curiosity to challenge the limits of what was “possible.” While respecting the teachings of past generations, he improved the quality of the finishes and applied his design knowledge to create new forms. He experimented with new techniques, formats, and applications.

    Bringing Ideas to Life

    In this way, he contributed to the development of the family workshop. As he grew as an artisan, so did the projects he took on. “I started accepting commissions from hotels, restaurants, and museums. They would ask me, for example, to create a mural installation of giant ants, a large niche decorated with butterflies in flight, or a hotel bar with geometric ‘tiles’.” The challenge wasn’t just the visual design. How do you bring those ideas to life? Black clay is fragile, but delicate shapes must withstand installation, transport, and temperature changes. Those new requirements led me to experiment with novel techniques and approaches.”

    Exploring Limits 

    I couldn’t help but see a parallel with the ups and downs of life in the face of adversity, something I’ve personally experienced since my cancer diagnosis. Suddenly, you find yourself in an unexpected situation that forces you to develop new skills. And to do so, you must draw on both what you’ve been taught and what you’ve learned yourself.

    “Not everything can turn out perfect. Do it again, try again, until it works.” Omar Fabián

    Omar also faces moments of difficulty, which generate uncertainty. Yet there’s an inner drive in him, a confidence in the future. Perhaps it’s the belief in his ability to navigate uncertainty and find solutions, to generate new ideas. His love for the craft he inherited and his creativity are his strength, though he may not say it explicitly, it’s clear to see.

    Over some water and mezcal, Omar and I shared experiences and came to the conclusion that this is how we’ll continue. Facing fear, with confidence. You might feel sad or tired at times, but deep down, you’re not afraid. You know the solution will come, and you trust the force that moves you.

    Life Force isn’t something grand, as my conversation with Omar reminded me. It manifests itself in simple ways, like knowing how to see the world with a fresh pair of eyes. Just like children do. Now I understand that, on that day, Omar recognised in my curiosity the same curiosity that drives him in everything he does.

    Now tell me, what helps you navigate uncertainty? Do you recognize creative force in your life? Share your thoughts in the comments.


    Do you not recognize this Life Force in your own story, or do you feel like you have lost yours?

    Let me know, I am a message away


    Life Force Stories | Part 1

    credits – pictures Barro negro @omarsutra | Picture Omar and Alba from my personal files

  • Is cancer making me antisocial?!

    A FEW DAYS BEFORE MY OPERATION, I CALL SOME FRIENDS WHO WANT TO SEE ME BEFORE THE PROCEDURE. PERFECT, I WANTED TO HAVE A FEW DRINKS WITH MY HUSBAND ON FRIDAY AFTERNOON ANYWAY, SO THEY CAN JOIN US. BUT THE TIME DOESN’T SUIT MY FRIEND AMALIA, SO SHE WILL COME ANOTHER TIME. I FEEL A BIT ANNOYED… BUT ALSO RELIEVED. AND I RECOGNISE THAT THIS HAPPENS TO ME MORE OFTEN IN MY SOCIAL CONTACTS SINCE I GOT CANCER. WHY? AM I BECOMING UNAPPROACHABLE? | ARTICLE ORIGINALLY WRITTEN FOR THE DUTCH PLATFORM “SHIT OR SHINE”

    Unapproachable, or not?

    It’s three o’clock on a Wednesday afternoon. I just got a call from the hospital to inform me that my operation is scheduled for next Monday morning. Finally! I have been waiting for this. I’m not nervous, but I do want to reserve an afternoon to spend with my husband before the rollercoaster begins. A Friday afternoon with snacks and wine. My friends Sarah and Amalia want to join, so they said. But Amalia has an appointment with her personal trainer that she can’t re-schedule or skip. She asks if she can come later in the evening. For me, that would be a bit late, and I tell her so. Then she wants to come over the weekend, but I want to reserve those days for my family. I feel a hint of irritation. So, feeling somewhat apologetic and somewhat irritated, I tell her: “Don’t feel obligated, there will be another time.” In part, I also feel relieved. I notice that I feel more and more distanced from her. Why is that?

    Since I got cancer, I more frequently recognise these feelings in my social interactions. Not only with friends but also with casual acquaintances. For example, someone sent me a message a week after my first chemotherapy, inviting me to go for a walk. This is someone from town who normally just waves at me when we bump into each other. I didn’t even know this person had my phone number; let alone how they got it. In this case too, I felt uncomfortable and somewhat apologetic, but honestly, I had no desire to go at all.

    In moments like these, I think: “Is cancer making me unapproachable?” Why?

    But it’s not always like this. Take this example: I went to the hospital for a CT scan, a few weeks after my mastectomy. The radiologist says to me: “Take off your bra.” I smile and look at her, and I say: “I’m not wearing a bra.” We look into each other’s eyes, and I continue: “I don’t have breasts.” I see the shock in her eyes as she realises, but we hold each other’s gaze and… burst out laughing. Then she asks me a few questions: she wants to know how I’m doing and how I find the whole process. The CT scan proceeds, and the interaction lasts no more than 10 minutes from start to finish, but I leave with a huge smile.

    So, what’s going on? Why do I let some people get closer and not others?

    There is always a good intention behind it

    Let’s start with these principles: people act with good intentions. And I know it’s difficult for those around me to know what’s right. They are walking on eggshells.

    So, if I know this, why do I still find ‘noise’ in some of my interactions? Have I always been like this? … There was a time of parties, reunions until the early hours, dancing until our feet hurt. That’s true. What is also true is that I have always preferred deep bonds, even if that means fewer friendships. At the same time, I’ve always enjoyed striking up a conversation with a stranger on the street, that’s also true. But not with everyone.

    Dancing till the feet hurt

    Connections in ‘high contrast’

    This is because I have always had the need to truly connect with the people around me. That’s how I engage, and I kind of expect the same coming from my contacts. Since I got cancer, it seems like I see everything through a high-contrast filter. Specifically: I have become more sensitive to the absence of connection. At the same time, I need this true connection even more. Authenticity has become more important to me.

    This applies to my friendships as well as to contact with acquaintances, and also with people on the street. The most important thing is that it feels authentic, sincere. Not all friends want to drop or change their things to accommodate my schedule. And really that’s fine, as long as the contact is sincere and not pretentious. Personally, I prefer a greeting with a broad smile from someone who sees me passing by on the street, rather than forcibly trying to ‘do something big and noble’, which our relationship was never based on. It doesn’t fit, it feels forced and uncomfortable. Despite the undoubtedly good intention. It seems less authentic to me.

    What to do? Some tips

    So, for me, less is more. I have become a tad more selective. Is this the perfect solution? No, there is a clear downside: this could lead me to isolation, of course. Even so, it is a conscious choice. I feel this is best for me. Does this apply to all people with cancer? Of course not, everyone has their own way and their own needs regarding their social contacts. And what works for me may not work for someone else. However, there are some tips I’d like to give:

    For the environment, those walking on eggshells

    1. Ask the person (find a suitable time and manner) what they need and what’s comfortable. Do it sincerely; they can feel that and is more likely to get you an equally sincere response and less awkwardness.
    2. Listen. Really listen, respect wishes and boundaries. It’s not about satisfying your own need to ‘do good’, but about what the person needs, can, and wants to receive from you.
    3. Be consistent. If you want to stay close to the person, stay close. If, on the contrary, your priorities honestly don’t allow you to maintain contact, that’s also fine, but don’t expect or force closeness.
    4. Offer practical help, such as cooking or doing some groceries. Here too applies, what is appropriate and sincere. For example, if the person is a mum of another child at school, offer to pick up the children after school.

    For those going through something similar to my experience

    1. Keep in mind that people act with good intentions. They do so with goodwill, and it’s very difficult for them to estimate what’s right for you.
    2. Be honest, especially with yourself. Answer sincerely and be clear about your needs, wishes, and boundaries.
    3. Be mild. With yourself and with others, perfection doesn’t exist.

    Ultimately, it’s about supporting each other in ways that really help. And that can be achieved by truly connecting with each other. Acknowledging the space availabe, without forcing things. A small and sincere gesture can be the seed of a great friendship.

  • The metamorphosis of the body

    MASTECTOMY: TODAY, I WANT TO TALK ABOUT THE TRANSFORMATION OF THE BODY, BUT IN A DIFFERENT, ALMOST METAPHORICAL WAY. THE WORDS ORIGINALLY FLOWED IN MY NATIVE LANGUAGE, PERHAPS BECAUSE IT IS SO INTIMATE. I MADE THIS VERSION IN ENGLISH TO SHARE WITH MORE PEOPLE THAT MIGHT BE GOING THROUGH A SIMILAR EXPERIENCE.

    Lee la version original en español

    Origin – the internal explosion

    The change began within, with an explosion of some restless cells, scared to death by who knows what cruel stress – and the inherited predisposition towards acceleration. Chaotic growth unleashed within me. Speed. Cells in panic.

    I talked to them to calm them down. My friends’ thoughts arrived from every corner of the world. Medications and therapies arrived. Precise scalpels. The cancer was removed. Prognoses consider its possible return, either in the long or short term. I face it. I hope it doesn’t come back. May my body remain vigilant, yes, but strong and clean, following its natural rhythm, free from alarms.

    Evolution – the external transformation

    My body has evolved: first from within – with the removal of my uterus and ovaries – leaving behind a scar from my heart to my belly as a witness. Now, the mountains of my breasts have been flattened, leaving traces of the scalpel and a void on each side of my chest. Still fresh.

    “It takes guts to witness my own transformation with eyes wide open.”

    The definition of the body

    My shapes have changed. My body is imprecise, not fully defined yet. And, I confess, it takes guts to witness my own transformation with eyes wide open. And love for this body; to continue finding the pretty stuff, the good stuff, the strong stuff.

    So it may find its new shapes: with feet firmly planted in life. A light heart. And a head full of the universe.

    This was the third post in a series on the impact of my mastectomy on me, from body to mind. I write one post every week while recovering from the procedure.

    Read the second post here

  • Work and Purpose II: A New Mindset

    Written in early 2024, as I found myself confronted with sick leave.

    klik hier voor de NL versie

    IT’S A RAINY RUSH HOUR EVENING IN OCTOBER 2023. I’M DRIVING BACK FROM THE OFFICE IN EINDHOVEN, FACING A TWO-HOUR COMMUTE HOME. THE TREATMENTS ARE BEHIND ME, ONCOLOGISTS HAVE DECLARED ME ‘CLEAN’. FOR NOW. EVERY DAY, I SWALLOW MEDICATION TO INCREASE MY CHANCES OF SURVIVAL. I GLANCE AT MY FELLOW COMMUTERS AND THINK, “TODAY, I MANAGED A FULL DAY OF WORK, I’M BACK IN THE GAME,” AND THEN I REALIZE I HAD CLOSED MY EYES FOR A FEW SECONDS. BEHIND THE WHEEL.

    on my way to work | Amsterdam 2023

    Update 2024 – Employability now

    Meanwhile, I am no longer working. The impact of treatment and side effects on my immunity, capacity, and body is even greater now than during treatment. Difficult, but I accept it. Although having a disease like cancer is never easy and working during illness is not always possible, working can be very valuable. For both employee and employer. It can help focus on what really matters in life. In the Netherlands, about a third of people with cancer work during their treatment. Research by TNO and the Arbo Unie shows the challenges and benefits of working during treatment:

    Employee

    • Faster recovery during and after treatment.
    • Prevention against negative mental effects during and after treatment, such as reduced risk of depression and social isolation.

    Employer

    • Reduced risk of absenteeism.
    • Increased productivity.
    • Faster reintegration process of the employee.

    Second stop on my journey: a new mindset

    The experience of working during my illness has brought me a lot. I have experienced that, when possible, meaningful work actively contributes to my well-being. Meaningful work, for me, is about connection and making a contribution to society. That’s why I now volunteer for the Olijf Foundation. Also through this blog. I want to offer fellow sufferers and their loved ones a helping hand, a place to shelter.

    There is still much to do and much we don’t know yet. This can cause unrest. But this mindset gives me confidence. It allows me to think in terms of possibilities, rather than being knocked down. And this is possible within my new reality.

    This is the second of two pieces about my experience of working during cancer treatment in the period of my first diagnose.

    READ THE FIRST ONE HERE

  • Kaleidoscope

    LEES HIER DE NL VERSIE

    A NEW REALITY

    Living with cancer is living in a new reality. From the moment of diagnosis, it’s a continuous process of discovery. Because what was once stable is now constantly changing. What was once familiar has disappeared and new things have taken its place. Constantly. Nothing is granted anymore. Uncertainty, trust, fear, hope, sadness, and yet humor… (“hey, humor… can that be?!” – you think then)

    You get a diagnosis and it’s a bomb, you undergo treatment and get hope, you ‘get better’, and then…

    The post-treatment journey is just as intense as the beginning. Just different. Because, now what? My job no longer fits, my body looks different, it reacts differently than I was used to.

    Paradox-Verlies-Opportunity

    VIEWING THROUGH THE KALEIDOSCOPE

    It’s akin to looking through a kaleidoscope. Everything changes constantly before your eyes… in shape, in color, in size. What you thought you knew could just have changed. It can make your head spin. Really. At the same time, it’s beautiful. Yes. Beautiful. If you accept this rhythm, it also offers new perspectives. I also discover strengths and qualities that I hadn’t seen before. And then I think – With a new body, new life, and new strengths, you should also be able to try on new clothes, find a new occupation, and even, perhaps, build new work. Rearrange your life again. – Right? And that’s what I’m busy with now, still very much at the beginning. And I won’t lie, I find it unexpectedly intense…

    It’s akin to looking through a kaleidoscope. Everything changes constantly before your eyes… in shape, in colour, in size. What you thought you knew may have turned completely different. It can be dizzying, indeed. Yet, simultaneously, it’s beautiful. Yes. Beautiful.

    If you embrace this rhythm, it also offers new perspectives. I discover strengths and qualities I hadn’t seen before. And then I think – With this new body, new life, and new strengths, I can take a new direction, try a new outfit, find a new way to spend my days, and even, just maybe, build new work. Rearranging my life anew. Right?

    That’s what I’m dealing with now, right at the beginning. And you should know, I find it quite intense, unexpectedly intense… It feels uncertain and, truth be told, almost every aspect of my life is uncertain.

    The kaleidoscope keeps turning…

    What I do feel certain about is that inner knowledge that IT’S-ALL-RIGHT. This is who I am now, it’s possible. It’s possible. Rearranging my life again. Enjoying my life as it is now, however long that may be. This inner knowledge is my compass. I will learn to dance to a new rhythm. I will learn to navigate with the kaleidoscope before my eyes. I choose how I want to live my life. NOW too.

  • Mindfuck

    Getting yourself and your life together through adversity is not easy. It is a whirlwind of thoughts and feelings. I wrote this post on one of those days.

    Lee la version en español

    WAITING IS NOT THE SAME AS PASSIVITY

    Today I tell myself that because I believe I need it. In these first weeks of the year, I’ve been making plans with my goals in mind: traveling, starting a blog, attending school, processing my work disability, mastectomy, and reconstruction. And everything seems to be hanging in the air. Because in the process, we have to deal with other people, schedules, doctors, schools. Weeks go by from appointment to appointment. And I, on a day like today, where I don’t see progress, oscillate between assuming the wait with a sense of guilt and the impulse to do something, anything; also with a sense of guilt.

    TICK | Do something. Make a decision. Book the first trip, buy the website. I wonder how it’s possible that all things are pending. Do others experience the same? Or is it the universe telling me something? Do I have to set things in motion, get the machinery running? Yes, no?

    TOCK | But… what if I make a bad decision? Because I’m impulsive… One must have patience for things to mature, like fruits. Everything has its time.

    TICK | But I feel that in recent years my lack of efficiency in achieving my goals has become evident. Other people just plan a trip, and that’s it. They change jobs, and that’s it. They schedule an appointment, and that’s it. And everything gets tangled up for me.

    TOCK | And what I see as I write these lines is that perhaps… the key point is to persist in these uncertain times. Breathe and continue. Just keep acting, remembering the why, those darned goals, but accepting the natural rhythm of things. So that they ripen.