•  “Hair – loss and hope”

    HAIR COMES IN MANY COLOURS, LENGTHS, AND STYLES. REGARDLESS OF HOW WE WEAR IT, HAIR IS PART OF OUR IDENTITY—AT LEAST, FOR MOST OF US. IT FRAMES OUR FACE, REFLECTS OUR PERSONALITY, AND CAN EVEN DEFINE OUR FEMININITY. BUT HAIR IS ALSO ONE OF THE FIRST THINGS YOU LOSE TO CHEMOTHERAPY. IN FEBRUARY 2023, IT WAS MY TURN. SLOWLY BUT SURELY, I SURRENDERED MY LOCKS. BUT NOT EVERYTHING WAS SADNESS—THERE WAS PLENTY OF ROOM FOR HUMOUR. LOSING MY HAIR WAS CERTAINLY A TRANSFORMATION JOURNEY THAT I’D GLADLY SHARE WITH YOU. BECAUSE THERE’S REALLY A LOT YOU CAN DO TO GET THROUGH IT WELL.

    An ode to my mane

    I was born with thick, black hair. My mother was even a bit startled when she first saw me (she said). One of my earliest memories is of twirling a lock around my finger while drinking from my bottle as a toddler. I loved it! And to this day, I still twirl a strand of hair around my finger when I’m deep in thought.

    My mane—thick, full, black with brown highlights—made me feel beautiful. It was part of who I was.

    “You’re gonna lose your hair” -she said…

    It’s February 2023. I was sitting with the oncology nurse when she said, “You’ll probably lose your hair. This chemo causes hair loss.”

    Honestly? After the shock of my diagnosis and the long list of gruelling side effects (early menopause, anyone?), hair loss didn’t feel like the biggest blow. And the nurse reassured me—there was plenty I could do about it. She was right.

    Still, it would be a mistake to underestimate the impact. I felt it, especially in the long run and at certain moments. Like the time I was in the shower and I suddenly held a whole thick strand in my hand. I won’t lie—I was shocked for a moment. Or when I caught a glimpse of a lady in the hallway mirror: a woman with a few sad, grey strands tied into a pathetic little ponytail. A second later, I realised—that woman was me. I felt the tears streaming down my face.

    But in the end, losing my hair was easier to accept than I had expected. I approached it with a mix of nostalgia and curiosity, seeing it as a chance to try new styles. And surely, this loss wasn’t as absolute or irreversible as some others one might endure in life. But it was still something I had to go through. A couple of things helped me through that process:

    The kindest hairdreser

    A good hairdresser is priceless. I had the best. Anja was my rock.

    As soon as I knew I’d lose my hair, I decided to go out in style. First, I went to Anja to celebrate my long hair: a wash, blow-dry, and styling session. A week later, I cut it to shoulder length. The week after that, even shorter—a bob. And then shorter still. When my hair was almost gone, Anja always had a solution. She was endlessly patient, doing everything she could to make me feel beautiful and safe.

    Cold-cap

    Nowadays, there’s the cold cap—a cooling helmet that lowers your scalp temperature to help protect your hair follicles from chemo. But it doesn’t work for everyone, and some people find it too uncomfortable.

    It works best for those with fine hair. I had thick hair, so I still lost a lot, just at a slower pace. Still, I thought it was worth trying. And if it doesn’t work, you can always stop.

    Wigs, headbands and hats

    Wigs and hairpieces are expensive. A wig can easily cost over €800. While part of it is covered by health insurance (€482.50 in 2025), you still have to pay quite a bit yourself. Fortunately, there are other options, like donation wigs for those on a budget. You can also get headbands made from your own hair, hats, scarves, or affordable hairpieces from your local hairdresser—so many possibilities!

    But where do you start? How do you choose? Everyone says, “Pick what suits you.” But it’s not that simple. Because how do you know what suits you until you experience it—until you’ve actually lost your hair and are wearing a wig, a hat, or just your bare scalp?

    I chose a wig, mainly for work. The idea of showing up bald or in a hat felt like a no-go. But at the time, I had no idea how I’d feel about it—I’d never been bald before. In the end, I only wore my wig at work. Even though it was beautiful and fit well, it still felt unnatural, and people could tell. Most of the time, I just walked around with my grey strands in a tiny ponytail. I also discovered that the cheaper hairpieces from my hairdresser suited me better than a fancy wig.

    Throughout this process, it does help to have someone who’s been through it before. At Cancer Connect, we have a huge database of options and, more importantly, our own experiences. We’re here as a sounding board for women going through this now.

    Humor en hoop

    Here’s the surprising part: Losing my hair gave me, unexpectedly, plenty of opportunities to laugh. And I say that as someone who cringes at people who laugh everything off—so that wasn’t it.

    I just developed a healthy dose of self-mockery and found ways to shock people a little—brilliant! Like the time I lifted my wig at a Disney ticket counter while asking about wait times—I got a fast pass immediately. Or when I put on a bright blue wig and greeted my kids with a straight face when they came home from school. Or when I plopped my wig onto my bald brother-in-law’s head—hilarious! We laughed so much.

    And then, there’s hope: Your hair comes back. In the meantime, there are countless options, and you can even find ways to have fun with it. But most importantly, it’s not forever.

    Almost everyone gets their hair back with ‘chemo curls.’ Ever heard of them? What happens next? I’ll tell you in my next blog.


    Do you relate to this experience?

    Are you at the start of this journey and unsure what you want or what’s available? How do you feel about it? Share your experience with us—together, we are stronger. And of course, you can always contact  me directly.

  • The metamorphosis of the body

    MASTECTOMY: TODAY, I WANT TO TALK ABOUT THE TRANSFORMATION OF THE BODY, BUT IN A DIFFERENT, ALMOST METAPHORICAL WAY. THE WORDS ORIGINALLY FLOWED IN MY NATIVE LANGUAGE, PERHAPS BECAUSE IT IS SO INTIMATE. I MADE THIS VERSION IN ENGLISH TO SHARE WITH MORE PEOPLE THAT MIGHT BE GOING THROUGH A SIMILAR EXPERIENCE.

    Lee la version original en español

    Origin – the internal explosion

    The change began within, with an explosion of some restless cells, scared to death by who knows what cruel stress – and the inherited predisposition towards acceleration. Chaotic growth unleashed within me. Speed. Cells in panic.

    I talked to them to calm them down. My friends’ thoughts arrived from every corner of the world. Medications and therapies arrived. Precise scalpels. The cancer was removed. Prognoses consider its possible return, either in the long or short term. I face it. I hope it doesn’t come back. May my body remain vigilant, yes, but strong and clean, following its natural rhythm, free from alarms.

    Evolution – the external transformation

    My body has evolved: first from within – with the removal of my uterus and ovaries – leaving behind a scar from my heart to my belly as a witness. Now, the mountains of my breasts have been flattened, leaving traces of the scalpel and a void on each side of my chest. Still fresh.

    “It takes guts to witness my own transformation with eyes wide open.”

    The definition of the body

    My shapes have changed. My body is imprecise, not fully defined yet. And, I confess, it takes guts to witness my own transformation with eyes wide open. And love for this body; to continue finding the pretty stuff, the good stuff, the strong stuff.

    So it may find its new shapes: with feet firmly planted in life. A light heart. And a head full of the universe.

    This was the third post in a series on the impact of my mastectomy on me, from body to mind. I write one post every week while recovering from the procedure.

    Read the second post here

  • Kaleidoscope

    LEES HIER DE NL VERSIE

    A NEW REALITY

    Living with cancer is living in a new reality. From the moment of diagnosis, it’s a continuous process of discovery. Because what was once stable is now constantly changing. What was once familiar has disappeared and new things have taken its place. Constantly. Nothing is granted anymore. Uncertainty, trust, fear, hope, sadness, and yet humor… (“hey, humor… can that be?!” – you think then)

    You get a diagnosis and it’s a bomb, you undergo treatment and get hope, you ‘get better’, and then…

    The post-treatment journey is just as intense as the beginning. Just different. Because, now what? My job no longer fits, my body looks different, it reacts differently than I was used to.

    Paradox-Verlies-Opportunity

    VIEWING THROUGH THE KALEIDOSCOPE

    It’s akin to looking through a kaleidoscope. Everything changes constantly before your eyes… in shape, in color, in size. What you thought you knew could just have changed. It can make your head spin. Really. At the same time, it’s beautiful. Yes. Beautiful. If you accept this rhythm, it also offers new perspectives. I also discover strengths and qualities that I hadn’t seen before. And then I think – With a new body, new life, and new strengths, you should also be able to try on new clothes, find a new occupation, and even, perhaps, build new work. Rearrange your life again. – Right? And that’s what I’m busy with now, still very much at the beginning. And I won’t lie, I find it unexpectedly intense…

    It’s akin to looking through a kaleidoscope. Everything changes constantly before your eyes… in shape, in colour, in size. What you thought you knew may have turned completely different. It can be dizzying, indeed. Yet, simultaneously, it’s beautiful. Yes. Beautiful.

    If you embrace this rhythm, it also offers new perspectives. I discover strengths and qualities I hadn’t seen before. And then I think – With this new body, new life, and new strengths, I can take a new direction, try a new outfit, find a new way to spend my days, and even, just maybe, build new work. Rearranging my life anew. Right?

    That’s what I’m dealing with now, right at the beginning. And you should know, I find it quite intense, unexpectedly intense… It feels uncertain and, truth be told, almost every aspect of my life is uncertain.

    The kaleidoscope keeps turning…

    What I do feel certain about is that inner knowledge that IT’S-ALL-RIGHT. This is who I am now, it’s possible. It’s possible. Rearranging my life again. Enjoying my life as it is now, however long that may be. This inner knowledge is my compass. I will learn to dance to a new rhythm. I will learn to navigate with the kaleidoscope before my eyes. I choose how I want to live my life. NOW too.

  • Raising flags – When great adversity strikes

    THIS IS MAYBE THE MOST SIGNIFICANT IMAGE FOR ME DUE TO THE PAST YEAR. THIS IS WHY, ONLY FOR THIS TOOL, I WILL TELL A LITTLE BIT OF MY STORY ADDITIONALLY TO THE EXPLANATION. BECAUSE THIS IS HOW I FOUND MY WAY AMID OF MY OWN GREAT ADVERSITY.

    It’s the beginning of 2023. I am at the hospital and I just heard I had cancer. I have never been so scared as that day. Like being struck by lightning. My whole universe changed forever and there I was in a new dimension. Paralyzed at first. But then, I started breathing again. This was surreal: I was breathing thin air, and at the same time I felt some kind of inner strength. Acceptance came, and I saw two scenarios next to each other. At one I was facing my own prompt mortality, at the other one I saw my body healing. Both are very real. And I took them both so I could LIVE instead of just moving through life. The way to live this new life is represented in this image of raising flags.

    Raising flags in adversity

    When great adversity strikes, you might feel paralyzed. However, the reality is that we -our bodies, minds and souls- are very resilient. Even when it doesn’t feel like that. We are resilient. Great adversity blinds us and confuses us. It hurts bad, that’s true. But eventually we will restart. We will pick up the thread of life.

    Solid base

    Because we are confused by the strike and the mess left behind it’s difficult to find sense. But the pieces are there, good and bad pieces. To start rebuilding, a solid base is needed. A REALISTIC one. Not false hope, not desperation. You need to see what it really is there: The good and the bad. As it is. This requires RADICAL ACCEPTANCE of the bad and RADICAL AWARENESS of the good that is still there. And then it’s a lot like business, although not as usual.

    Preparing for the worst

    By radically accepting the bad, the ugly, the inconvenience and the imperfection you will see your WORST-CASE SCENARIO. This is what you want to be prepared for. Here you will find practical stuff like finances and householding, but also work and relationships. The goal is pursuing safety. In my own worst-case I put my testament, a short holiday with my family, my short-term health and the need to stop working (although it was painful).

    Aiming for the good

    Being radically aware you will be able to see the good, your BEST-CASE scenario. This is what you want to aim for. Here you will find also practical stuff, work, health, relationships, but at a deeper level. You will find here spirituality, purpose and development. Questions like: does my work still fit? Do I need a big house or can I live in a smaller one so I can travel more? Do I want stronger bonding with my family, children or friends? What can be possible? This scenario has nothing to do with false hope, but with the realistic space that you have to create your new ambitions. To enjoy life. In my scenario I put my psychology practice and going back to bouldering for example.

    RaisingFlagsinAdversity_Explanation

    Keeping the flags raised

    Raising both flags is a response to great adversity, some guidance to pick up the thread. Keeping the flags raised means:

    1. Both scenarios exist in parallel to each other.
    2. You embrace 100% each one of them.
    3. You switch between both, preparing and aiming.

    Great adversity is a part of life, it can strike anytime. We are all resilient, and we all respond to adversity in our own way. Being and staying struck is also valid, and very understandable. If you choose to raise again, this can offer you guidance.

    With love and respect.

    The Self-esteem Batteries card is created in collaboration with psychologist Theo Verhoeven. It is one of my compilation of Life Force Tools, practical strategies to build resilience in adversity.